Please Pray for Toby!!!

Below is an email from our good friends about their baby Toby. Toby and Claire were born 2 days apart and we have him pictured in several of our pictures. Please keep this family and baby Toby in your prayers! We know that God is good and we pray everything with Toby will turn out ok.

Claire and Toby: A few days after they were born

Hello All,
This morning Toby had his long anticipated appointment with Dr. Wolf, a Nuero-Opthamologist. This was the appointment
we were excited about, as we hoped it would be the LAST appointment Toby would have to endure, and we could put
all of our fears and concerns at rest...
Unfortunately, we're in for another roller coaster ride. After some questions, tests, and more questions, Dr. Wolf presumes
his condition to NOT be Anosicoria (a congenital issue we were hoping it would be.) Instead, he believes that Toby has been
suffering seizures and that his seizures have caused him to go blind. There are times when Toby seems to be "sleepy"
or sometimes napping with his eyes open, and we were informed these are seizures, and explain the uneven pupil dilation.
I actually argued with the doc, as I know that Toby has smiled directly at my face and acknowledged my presence. His thoughts
are that blind infants are very keen on voice recognition, and touch, and will appear as though they are looking at you, but instead
are just directing themselves towards the familiar sound. Dr. Wolf did some basic visual response tests, and Toby failed them all.
He passed keys silently by him, and Toby didn't respond. It was only until the doc jiggled the keys, that Toby turned and tracked.
The diagnosis is that they are certain there is some kind of nuerological/brain issue, but are hesitant to tell me what they think it is.
They say that there are "connections not being made" because of the seizures taking place, and this is causing his blindness. The level
of blindness is hard to determine because he's so young, but they are fearful that if seizures are causing any "brain connection" damage
related to his eyesight, that it could progress to more serious, possibly life threatening issues.
We spoke with Toby's pediatrician, Dr. B, this afternoon, and Toby is awaiting a spot at Phoenix Children's Hospital for an EEG, which is an
electroencephalogram, that measures brain activity with electrical currents, etc. He'll need to be sedated, or possibly put under, but we'll see.
The good news is that Phoenix Children's is a World Renowned Hospital, and he'll be receiving excellent care and testing. He should get a spot
within 2 weeks, and believe me, I'm going to push for it.
So, the Smith fam has had quite the experience, but the Lord has seen us through each and every one of them. Toby is a testament to
dependence on Christ, no matter the outcome of the situation. Our family is learning that reliance on Him is the only answer. In the past month,
Toby has had a possible brain tumor, possible brain infection, has seen over 9 doctors, ER visits,CT scans, Blood work, Seizures, and now potential
blindness. I'm grateful that my little boy won't remember all of the chaos.
James tells us, "Consider it pure joy, my brothers, whenever you face trials of many kinds, because you know that the testing of your faith develops
perseverance. Perseverance must finish its work so that you may be complete, not lacking anything." James 1:2-4
So, we welcome the chaos. We welcome the joy that comes from complete reliance and dedication to Christ. We WILL see this through.
This is a battle, and we ask that you join us in this battle and pray fervently for our little boy. We also ask that you pray for our peace,
and that anxiety has no place in our home and family. We are grateful for your support, love and prayers.
Grace and Love,
Keaton, Amy, Mason, and Toby